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12 Days of LGS Giving Stories
Because You Give, We Can Give To Others!!

Thanks to you, we are changing the world of LGS!

As we wrap up 2022, we would like to extend our deepest gratitude and thank you for all the ways you support and empower the LGS Foundation and those impacted by this horrible disease. 

We invite you to follow and share the 12 Days of Giving throughout December to celebrate important moments made possible because we are Standing Together and Stronger Together!

Please share these special moments with people you know – Because Every Moment Matters!


The LGS Research Roundtable Was A Huge Success!

Every year, the LGS Foundation hosts the LGS Research Roundtable at the American Epilepsy Society (AES) meeting. This year's meeting, which was in Nashville, filled us with so much hope as we learned from medical experts about exciting research going on to find better treatments and cures for LGS. Topics included:
The Natural History of LGS
An Update on Medical Treatments for LGS
About a New PCORI-Funded Study Comparing Surgery vs. Medication in LGS
Comparing Corpus Collosotomy to Vagus Nerve Stimulation (VNS) in LGS
Responsive Neurostimulation (RNS) in LGS
Deep Brain Stimulation (DBS) in LGS
Clinical Trial Design in LGS
Measuring the Evolution from Infantile Spasms to LGS

These talks set the stage for our upcoming 2023 LGS Meeting of the Minds: Advancing Clinical Research in LGS, which will take place in September at the University of Maryland and help guide the research funding strategy for the LGS Foundation in 2023 and beyond. We hope you will take a moment to learn more about these important updates in LGS Research and plan to join us for the Meeting of the Minds.

We Are Committed to
Funding LGS Research! 

Since 2014, the LGS Foundation has funded over one million dollars in LGS research.

The Foundation’s Cure LGS 365 Research Grant program has provided funds for fourteen projects around the world, and we are not done yet! 

The LGS Foundation accepts unsolicited proposals year-round to seed new basic, translational, and clinical research projects on LGS. 

Save the Date
2023 Meeting of the Minds: Advancing Clinical Research in LGS

The LGS Foundation is hosting its second Meeting of the Minds to discuss how we can Advance Clinical Research in LGS. For this hybrid conference, we will bring together patients, families, doctors, researchers, and partners to understand how we can learn from every patient and brainstorm how to find the best treatments for LGS.

The Family Science Day will be on September 16, 2023. We hope you will join us!




Planning an LGS Event or FUNdraiser?
You can now submit your upcoming LGS events to our Calendar of Events so we can help spread the word! Check it out.

Clinical Trial Opportunity for Those with LGS
The PACIFIC Study is a Phase 1b/2a clinical study for adult participants with DEEs. This study will assess the safety & tolerability of LP352.

Has your Loved One had Epilepsy Surgery?
Please take a moment to complete this short survey for one of our scientists. Answers will remain anonymous.


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Lennox-Gastaut Syndrome (LGS) Foundation
6030 Santo Road, Suite 1 Unit 420878 | San Diego, California 92142

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