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A New Behind the Mystery of LGS Airing for
Rare Disease Week

Rare Disease Day is February 28, 2023, which kicks off Rare Disease Week. The LGS Foundation has many exciting things planned!

You can go Behind the Mystery of LGS with us again on The Balancing Act airing on Lifetime TV. In this new segment, we emphasize the importance of patient-led research. Please watch and share!

The Advocates for LGS will also be on Capitol Hill for Rare Disease Week. You can participate from home as we make our voices heard to our Congress Members. This annual event is an excellent opportunity for our community to raise awareness about LGS and what is important to our families. 

Ways to Get Involved:

“We are harnessing the power of the patient family community to ensure that research, care, support services, education, and awareness of LGS are relevant for those living with LGS and their loved ones.”

Save the Date - May 6, 2023

The LGS Foundation is hosting its 8th Annual Walk ‘n’ Wheel for LGS Research on Saturday, May 6, 2023. You don't want to miss it! 

This year we are expanding our reach with two official in-person events and virtual opportunities to attend. In addition, we encourage our community (that's you!) to host local walks in their neighborhoods and communities. 

Stepping Towards the Cures, Together

15th Anniversary - Fun Fact!

Did You Know?

The LGS Foundation launched the LGS Research Grant Award Program in 2014.

Since 2014, the LGS Foundation has funded over one million dollars in LGS research.

The Foundation’s Cure LGS 365 Research Grant (formerly known as the LGS Research Grant Award Program) has provided funds for over a dozen projects around the world, and this number is poised to grow rapidly in the coming years.

About the LGS Community of Support 

The LGS Foundation has grown expeditiously in the last 15 years. We would like to take some time to reintroduce you to our amazing community of support. Each month we will feature someone who has made a significant impact on the lives of those affected by LGS. 

This month we would like to you meet...
LGS Patient Navigator Michelle Harless

Michelle lives in the Appalachian Mountains of Eastern Kentucky with her husband David, daughter Dovie, and LGS son Wesley.  Wesley is currently in 6th Grade and loves dinosaurs.

Michelle shares, "I believe that as a caregiver, we are the best advocates for our loved ones. As a parent, I will not settle for less for my son. My goal is to help others advocate for the best quality of life for our LGS kids." 


Special Announcement - The End of Amazon Smile

Unfortunately, Amazon is discontinuing its Amazon Smile program on February 20th.

Thank you to everyone who donated through this program in the past to support us. Get your last-minute shopping done while the program is still in place, or consider making a one-time donation to help us compensate for the loss of this valuable program.



5 Active Clinical Trials for LGS

Learn more about current Clinical Trials for those with LGS.

Patient Assistance Program is OPEN!

Financial assistance to help pay for durable medical equipment.

LGS Learning & Resource Center

LGS is tough. Finding info doesn't need to be. Check it out!


Follow the LGS Foundation on Social Media


Lennox-Gastaut Syndrome (LGS) Foundation
6030 Santo Road, Suite 1 Unit 420878 | San Diego, California 92142

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