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LGS Awareness Continues During Epilepsy Awareness Month

This November, during Epilepsy Awareness Month, we aim to shine a light on Lennox-Gastaut Syndrome to raise awareness about this rare and severe epilepsy syndrome.

By increasing awareness of LGS, its symptoms, and its impact, we can foster a more inclusive society that offers appropriate support for those affected. Awareness campaigns serve as a catalyst for advocacy, research, and improved resources for individuals living with LGS. You can help!

Learn more about our awareness efforts and get involved today by clicking below!


Welcome Our Newest Team Member, Eric McVicker

Our small team is growing!

Please join us in welcoming Eric to the team as our new Director of Development.

Eric comes to us with a diverse professional background including legislative advocacy, political and organizational fundraising, commercial real estate, and photography.

We are excited to welcome him into the LGS Foundation family. 


15 Years of Progress and Hope

Standing Together. Stronger Together.

A few weeks ago, we had an amazing evening in San Diego, CA celebrating 15 Years of Progress and Hope. We raised over $90,000 to support, empower, and educate LGS Families and fund critical research toward the cures. We cannot thank this amazing community enough for its support and generosity!

It has been an absolute honor to serve the LGS Community for the last 15 years, and we're looking forward to what the next 15 years will bring!


About the LGS Community of Support 

The LGS Foundation has grown expeditiously in the last 15 years, so we're taking some time to reintroduce you to our amazing community of support. 

Each month we feature someone who has made a significant impact on the lives of those affected by LGS. 

This month we would like to you meet Lisa Feather, LGS Family Ambassador.

Lisa and Stephen are parents to Caleb who has LGS, age 24. They live in Fayetteville, Georgia.  

"When Caleb was diagnosed with LGS in 2005, we searched for help but there was no LGS Foundation then.  About 7 yrs later we found the LGS Foundation and made plans to attend our first LGS Foundation event in Orlando. I remember meeting all these amazing families with incredible journeys. On the way home from Orlando, Caleb had a major medical event happen. While he was in the hospital, I remember these women I just met sending me texts to check on us. Both Stephen and I are so thankful to have found such a supportive community. As an LGS Ambassador, I want to make sure every family feels supported and loved through their LGS journey as well."



Get the LGS Social Awareness Toolkit

We need your help! Raise Awareness this November with our Social Awareness Toolkit.  

Learn More about LGS and Genetic Testing

Genetic testing is useful in many areas of medicine and can change the medical care received.

Own Your LGS Loved One's Medical Records

Your medical records tell a story, one that can advance research and help shape future treatments.


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Lennox-Gastaut Syndrome (LGS) Foundation
6030 Santo Road, Suite 1 Unit 420878 | San Diego, California 92142
718-374-3800 | info@lgsfoundation.org

Standing Together. Stronger Together.
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