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International LGS Awareness Day is November 1st!

This year, the LGS Foundation celebrates our 15th Anniversary of serving the LGS Community and raising awareness of Lennox-Gastaut Syndrome. As awareness spreads, more people choose to stand with us. Together, we're getting closer to fulfilling the hope of ending the suffering and devastation experienced by those impacted by LGS. 

Please join us in raising awareness and funds to improve the lives of the over 1 million people worldwide with LGS and their families... There are many ways to get involved, and we can't do it without you!

Thank you to our International LGS Awareness Day Sponsors:

Jazz Pharmaceuticals, Takeda, Neurelis, UCB, Marinus, Azurity, and Eisai


Save the Date for our 9th International Family & Professional Conference

Phoenix, AZ | July 12-14, 2024

Every two years, the LGS Foundation organizes a comprehensive multi-day educational meeting that brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with LGS.

Sessions cover everything from treatment options to services and include information on improving quality of life, accessing resources, and much more.


15 Years of Progress and Hope

Standing Together. Stronger Together.

“In 15 years, the families and volunteers that make up the LGS Foundation have made tremendous progress in improving lives. The LGS Foundation provides extensive family support, including offering online support communities, as well as mailing families educational materials on getting the diagnosis, learning about treatments, and supporting siblings. We also fund the greatest minds in the world to advance LGS research towards better treatments and cures.”

- Tracy Dixon-Salazar, PhD, Executive Director


About the LGS Community of Support 

The LGS Foundation has grown expeditiously in the last 15 years, so we're taking some time to reintroduce you to our amazing community of support. 

Each month we feature someone who has made a significant impact on the lives of those affected by LGS. 

This month we would like to you meet Andee Cooper, LGS Family Ambassador.

Andee & Kannon Cooper live in Jenks, OK.  Kannon is 15 years old and living with LGS.

"There is something devastating about raising a child and never knowing where they fit. The LGS Foundation has given us a place and people to love and call home. The people I've met along this journey are family to us."



RNS System Clinical Trial

RNS System Responsive Stimulation for Teens and Adults with Lennox-Gastaut Syndrome (LGS) Study 

Resources for LGS Caregivers

Looking for information, materials, and/or resources for Lennox-Gastaut Syndrome? We're here for you!

Stamp Out VNS Myths!

When it comes to Vagus Nerve Stimulator therapy (VNS Therapy) for seizure reduction, do you know fact from fiction?


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Lennox-Gastaut Syndrome (LGS) Foundation
6030 Santo Road, Suite 1 Unit 420878 | San Diego, California 92142
718-374-3800 | info@lgsfoundation.org

Standing Together. Stronger Together.
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