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Help Us Raise LGS Awareness This November!

On November 1st, International LGS Awareness Day will kick off Epilepsy Awareness Month!! With International LGS Awareness Day less than two weeks away and so many new ways to get involved and raise awareness, we couldn’t be more excited! 

This year, in addition to several in-person events, we are offering two fun new ways to help shine a light on Lennox-Gastaut Syndrome. You can help us raise awareness online and in your community with this year's LGS Awareness Social Media Toolkit and at-home LGS Awareness Boxes

There is no cure for LGS, but with Awareness, there is Hope! 
We need your help in raising awareness to end the suffering and devastation caused by LGS!


Let's Discuss How We Are Advancing LGS Medical Research

Join us on December 2, 2022 as we hear updates from our grant recipients and research collaborations.

LGS may be treated with drugs, diets, neural stimulating devices, brain surgery, and/or alternative therapies, but of the more than 30 therapies that exist to treat seizures, no specific therapy is effective to stop the seizures in LGS.

Join us to hear how we plan to change that!!


Calling All LGS Dads (and Other Male Caregivers)!

The LGS Foundation recognizes the unique positive impact of Dads on their children with special needs. To enhance and sustain this impact over time, LGS Dads need a place for support and encouragement. The LGS Foundation responded to this need by creating the LGS Dad-to-
Dad Support Group in May 2021.

This group was created by Dads for Dads. Meeting are held once a month on the third Wednesday at 8:00pm ET via Zoom.

Join the LGS Online Family Community for more information. 




We Want to Hear From You!

Share your input and ideas on how we can improve the LGS Foundation's programs and services to support our community better. Plus, you'll be entered for a chance to win an Amazon Gift Card!

LGS Research Study Update

The STARS Study is a phase 3 clinical trial to determine if the drug Alprazolam, administered via a Staccato Inhaler Device, will work to stop prolonged seizures that last more than 3 minutes.

Caregivers Need Care Too!

Whether you care for someone who is recently diagnosed with LGS, are adapting to new challenges as the disorder evolves, or have been living with LGS for a long time, we are here for you! 


Lennox-Gastaut Syndrome (LGS) Foundation
6030 Santo Road, Suite 1 Unit 420878 | San Diego, California 92142


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Thank you for your support! 
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