Having trouble viewing this email? View it in your web browser

 
 

Register Now to get Conference Early Bird Pricing!

Join us in Phoenix, AZ this July! Our comprehensive multi-day educational meeting brings together hundreds of LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with LGS.

Sessions cover topics like treatment options, improving quality of life, accessing resources, and much, much more. This year, we'll also have numerous workshop opportunities with subjects ranging from challenging behaviors and genetics to advocacy and adults with LGS. View the agenda for more information. 

“Attending the LGS Conference is good for the mind, body, spirit and soul.”

- LGS Caregiver, Attended the 2022 Conference

You don't want to miss it!

 
 

New Cure LGS 365 Grant Awarded!

Because of the funds you raise, we are able to fund patient-led research.

The LGS Foundation recently funded an exciting new research study that will identify risk factors and predict the progression of LGS in children. If we can predict who will get LGS, perhaps one day we can prevent it!

This work is being conducted by Dr. Juliet Knowles of Stanford University School of Medicine and Dr. Zach Grinspan of Weill Cornell School of Medicine.

 

Make Your Voice Heard!

Each LGS family's situation and experiences are unique. The goal of this survey is to define what ‘normal’ and ‘disruptive’ mean to you and your loved ones' quality of life.

The survey will ask about activities of daily living, communication, behavior(s), sleep, and seizures.

Take the survey today to have your voice heard!

 

Our Community: Meet Cash

We love sharing stories and getting to know one another, so each month we will feature a member of our amazing community. This month, we would like you to meet Cash.

Cash started having seizures when he was 3 weeks old. These were easily controlled with medications. Then, shortly after Cash’s first birthday, the seizures returned! 

His Mom shares, "My advice for other LGS caregivers is to make the most of every moment, hang on to the good times to help get you through the hard times, and NEVER LOSE HOPE!"

 

LGS RESOURCE CORNER

Learn About Clinical Trials

Clinical trials and research studies are done to scientifically evaluate a medical or surgical intervention. They are the primary way that researchers find out if a new treatment is safe and effective in reducing seizures in those with LGS.

Check Out the Calendar of Events

Get connected and supported at an online support group or an in person event when you can join us in raising awareness and increasing education at one of our many Community Awareness Events.

Apply for Patient Assistance

The Elevate Patient Assistance Program provides financial assistance to individuals with LGS to help pay for durable medical equipment not typically covered through insurance or other programs.

 
 

Home       Privacy       Give       Volunteer       Calendar

Lennox-Gastaut Syndrome (LGS) Foundation
6030 Santo Road, Suite 1 Unit 420878 | San Diego, California 92142
718-374-3800 | info@lgsfoundation.org

Standing Together. Stronger Together.
 
Unsubscribe or Manage Your Preferences