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Help Raise LGS Awareness this November!

YOU are a part of something BIG, and your efforts make a BIG impact! Please join us in raising awareness for the more than 1 million children and adults worldwide living with Lennox-Gastaut Syndrome.

Each November, the LGS Foundation organizes international social media campaigns, events, and fundraisers to raise awareness and funds to support the LGS Foundation’s Mission to improve the lives of individuals impacted by LGS through advancing research, awareness, education, and family support..

This year marks our 15th Anniversary of serving the LGS Community and raising awareness. As awareness spreads, more people choose to stand with us. Together, we get closer to fulfilling the hope of ending the suffering and devastation experienced by those impacted by LGS.

How You Can Get Involved:

Help Support the Mission - Start a Personal Fundraising Page (Don't forget to get the Toolkit)
Raise Awareness in Your Community - Order an LGS Awareness Box
Show Your Support - Grab your LGS Awareness Apparel

Learn More about LGS Awareness

Attend the Meeting of the Minds Family Research Day Virtually!

Patient families must be involved in accelerating research in LGS. LGS has been treated the same way for more than 30 years. It's time to change that!

The LGS Foundation is once again bridging the gap between patient families and researchers to drive LGS research to new heights at our 2023 LGS Meeting of the Minds.

Space is limited, so don't hesitate to reserve your spot today by emailing Kathy@LGSFoundation.org.

Learn More

LGS Advocates are Raising Their Voices!

Just 6 months after we took the nation’s capital by storm for Rare Disease Week on Capitol Hill, the Advocates for LGS were at it again in their local communities as part of Rare Across America.

This annual event takes place during the first two weeks of August when our representatives are in their home states and communities to meet with their constituents. The EveryLife Foundation provides multiple trainings and opportunities to make this as simple as possible for ALL advocates, even those who are brand new to the advocacy space.

Read the Full Blog

15th Anniversary Fun Fact!

International LGS Awareness Day was established in 2012!

International LGS Awareness Day is November 1st, which kicks off Epilepsy Awareness Month. Each year, we raise awareness for the more than one million children and adults worldwide living with Lennox-Gastaut Syndrome!

By raising awareness of LGS, our community can increase knowledge in the general public; improve early diagnosis; ensure that patient families have the information they need to manage their loved one’s care; and reduce the feelings of isolation faced by patients and their families.

Learn More

About the LGS Community of Support

The LGS Foundation has grown expeditiously in the last 15 years, so we're taking some time to reintroduce you to our amazing community of support. Each month we feature someone who has made a significant impact on the lives of those affected by LGS.

This month we would like to you meet...

LGS Family Ambassador Jennifer Fisher

Jennifer, her husband Brian, and four children live in Minnesota. They enjoying traveling and spending family time together on the lake.

"Our initial years of uncertainty would not have been possible without the great support system we have. I want to be that for other families. No one should walk this journey alone!"

Learn About the Patient Navigator & Family Ambassador Program

LGS RESOURCE CORNER

LGS Learning & Resource Center

The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center so those living with LGS can easily find reliable information.

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How to Talk to Your Doctor

Preparing for a doctors visit can feel overwhelming.

Use these free downloadable tips to make the most of your next visit.

Download Materials

The LGS DISCOVER Study

This study will evaluate whether an investigational medicine called carisbamate, when given along with other anti-seizure medications for epilepsy, can decrease the number of seizures in LGS.

Learn More