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Friend, Thank you for your continued support of our mission! We couldn't do it without YOU! 

As another year comes to an end, it's time to reflect and celebrate our many achievements.

The last decade and a half has brought forth so many positive changes for our community. This would not be possible without your support. Together, we are pushing to ensure that research, care, support services, education, and awareness of LGS are relevant for our loved ones.

As we look to the future, we are excited about the opportunities that lie ahead. There is much work to be done, but we are confident that with this community's unwavering commitment, we will continue make great strides towards the Cures for LGS. 


Key Takeaways from the Recent AES  Annual Meeting

The recent American Epilepsy Society (AES) Annual Meeting brought together more than 6,000 healthcare providers, scientists, patient advocates, industry partners, and other professionals dedicated to better outcomes for people with epilepsy. It was really energizing to attend this meeting and hear about all the incredible work being done to help those living with LGS.

  1. There is more LGS research than ever before!
  2. Research funded by the LGS Foundation is front and center at the meeting!
  3. Our LGS researchers and partners are spreading the word that working on LGS and with the LGS Foundation is a winning combination!

15 Years of Progress and Hope

Standing Together. Stronger Together.

It’s happening! We are changing the future for those impacted by LGS! 

Throughout this 15th Anniversary year, we've paused to recognize the future-changing moments that have already happened thanks to you, our incredible community of support.

During this holiday season, we're asking everyone to consider adding something incredible to your gift list: HELP and HOPE for those impacted by LGS. Any gift you give, no matter the amount, has the power to change the future. 


About the LGS Community of Support 

The LGS Foundation has grown expeditiously in the last 15 years, so we're taking some time to reintroduce you to our amazing community of support. 

Each month we feature someone who has made a significant impact on the lives of those affected by LGS. 

This month we would like to you meet LGS Community Support Coordinator, Jeannie Schnur. 

Jeannie and Carl Schnur live in Leesburg, VA with their 3 children, Jackson, Tenley and Bennett. Jackson is 14 years old and has LGS. 

"Being an Ambassador for the LGS Foundation gives purpose to the pain we've experienced on this crazy journey. It helps us to be able to give back and help a newly diagnosed family avoid some of the heartache early on. Some of our very best friends we've met through this amazing organization."



New Family Welcome Kit

Newly diagnosed with LGS or new to the LGS Foundation, and need up-to-date information? 

Order your Kit today to learn more about the LGS Foundation, our programs, and support services.

About LGS Treatments Kit

These Kits are for families who are considering “What’s Next” in treatment.

This comprehensive kit contains information on current treatments, clinical trials, and tips on maximizing your time with your loved one’s healthcare team.

VIP Caregiver & Sibling Kits

Living with a chronic illness impacts everyone in the family.

Thanks to continued collaboration with UCB and more than 10 rare epilepsy advocacy groups, we are now able to provide new resources to support siblings and their families.


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Lennox-Gastaut Syndrome (LGS) Foundation
6030 Santo Road, Suite 1 Unit 420878 | San Diego, California 92142
718-374-3800 | info@lgsfoundation.org

Standing Together. Stronger Together.
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