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Join Us in Advancing LGS Research!

Each year, the Walk ‘n’ Wheel for LGS Research mobilizes community members to raise awareness of LGS and funds for the LGS Foundation's "Finding the Cures, Together" Research Program. 

WHY? Because we’ve learned that if families aren’t funding research that matters to them, no one is. And the only way we can fund cutting-edge, patient-led LGS research is by raising the funds ourselves, so that’s what we’re doing! 

YOU can join us in Stepping Towards the Cures, Together by:

💜 Creating and sharing your personal fundraising page

💚 Using the social media guide to raise awareness

💜 Hosting a local walk in your community

💚 Personalizing and sharing your ‘What is LGS’ info cards 

💜 Attending a Walk 'n' Wheel in North Carolina or Florida

💚 Giving to support LGS research

 
 

New Blog: Can anything good come from this LGS life? The answer for me is… Yes!

"This is a question I’ve asked myself many times over the years. Through the constant ups and downs and watching my son, Aaron, suffer for decades, my answer has varied... The older I get the more I realize the most precious thing in life is relationships and love." 

Check out our new blog, where Darla tells the story of how she met Gayani, built a friendship, and traveled to Sri Lanka to visit her and Nethupa! 

"I can’t imagine my life without my LGS family and all the relationships that I have loved over the years."

 

Create Your SAP Today!

A seizure is a medical emergency!

A Seizure Action Plan (SAP) contains tailored guidelines on how to respond during a seizure, based on the patient’s medical history. 

We encourage all caregivers to create and share their LGS Loved One's Seizure Action Plan.

Educate and empower your family and friends to respond if your child has a seizure by creating and sharing your child’s Seizure Action Plan today.

You can find tools and resources on our website and at SeizureActionPlans.org. 

 

Register for the 9th International Family & Professional Conference 

We hope you'll join us in Phoenix, AZ this July! Our comprehensive multi-day educational meeting brings together hundreds of LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with LGS.

Sessions cover topics like treatment options, improving quality of life, accessing resources, and much, much more. This year, we'll also have numerous breakout opportunities with subjects ranging from challenging behaviors and genetics to advocacy and adults with LGS. You don't want to miss it!

 

Our Community: Meet Micah

We love sharing stories and getting to know one another, so each month we will feature a member of our amazing community. This month, we would like you to meet Micah.

Micah loves school and his friends. He loves to go on trips to the beach, the aquarium, and the zoo.

He recently received an iPad from the LGS Foundation's Elevate Patient Assistance Program. 

His mother shared, "It has been great because he is learning how to communicate in his own special way. I’m beyond grateful and thankful for this Foundation, and I know they will continue to do great things!"

 

The Elevate Patient Assistance Program is NOW OPEN!

The LGS Foundation’s Elevate Patient Assistance Program provides financial assistance to individuals with LGS to help pay for durable medical equipment not typically covered through insurance or other programs.

This program is open to residents in the United States. The grant cycle opens in February and remains open until all funds are depleted. Families may submit an application for assistance once every five years, with the maximum allowance per family, per application, being $1,500.

 

LGS RESOURCE CORNER

Create a Seizure Action Plan Today

A Seizure Action Plan (SAP) contains tailored guidelines on how to respond during a seizure, based on the patient’s medical history.

Learn About Seizures and Safety

Safety is a constant concern for those with LGS. Check out the website for seizure safety information, tips, and resources.

Learn About different Types of Seizures

Seizures often change in children with LGS as they grow and develop, so we created a video library of what seizures may look like.

 
 

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Lennox-Gastaut Syndrome (LGS) Foundation
6030 Santo Road, Suite 1 Unit 420878 | San Diego, California 92142
718-374-3800 | info@lgsfoundation.org

Standing Together. Stronger Together.
 
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