Our Advocates for LGS are
Headed to Capitol Hill
Coming together and sharing our voices is a powerful tool in bringing about the change we want to see.
During Rare Disease Week, our Advocates for LGS are headed to Capitol Hill to make their voices heard by their Members of Congress.
There they will amplify the voices of the LGS Community to make sure lawmakers understand LGS as they prioritize their work. The more people who know about LGS, the more it can be studied. And the more we share what it is like to live with LGS, the more Congress can prioritize research and resources for our community.
If you would like to become an Advocate for LGS, please go here for more info.
Even a phone call or letter to your Congressperson can tip the balance towards change. Join us as we seek to end the devastation and suffering caused by LGS.