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LGS Foundation is Celebrating 15 Years!

2023 is finally here, and we couldn't be happier!

This year, the LGS Foundation celebrates its 15th Anniversary. Wow!

It has been an exciting decade and a half of growth and success. Our events and programs have advanced to improve the lives of all those impacted by LGS. 

YOU have helped make a difference at the LGS Foundation, and your tremendous efforts have been woven into our impactful 15-year history. Our team is in awe every day at the passion, tenacity, perseverance, and drive this community has to help end the devastation and suffering caused by LGS.

Help us celebrate this momentous year with a look back on all we have accomplished TOGETHER!

Looking Ahead...

Because of you, we have much to celebrate and amazing things to look forward to in 2023! To view the full list of our accomplishments, check out Our Impact page.

Our Advocates for LGS are
Headed to Capitol Hill 

Coming together and sharing our voices is a powerful tool in bringing about the change we want to see.

During Rare Disease Week, our Advocates for LGS are headed to Capitol Hill to make their voices heard by their Members of Congress.

There they will amplify the voices of the LGS Community to make sure lawmakers understand LGS as they prioritize their work. The more people who know about LGS, the more it can be studied. And the more we share what it is like to live with LGS, the more Congress can prioritize research and resources­ for our community.

If you would like to become an Advocate for LGS, please go here for more info.

Even a phone call or letter to your Congressperson can tip the balance towards change. Join us as we seek to end the devastation and suffering caused by LGS.

Thank You for Your Feedback

Several months ago we sent out a Community Survey to assess what the LGS Foundation is doing right and identify those things we can do better. Here are some highlights from the feedback we received:

About the LGS Community of Support 

The LGS Foundation has grown expeditiously in the last 15 years. We would like to take some time to reintroduce you to our amazing community of support. Each month we will feature someone who has made a significant impact on the lives of those affected by LGS. 

This month we would like to you meet...
LGS Family Ambassador Diane Hettasch

Diane, her husband, and three girls reside near Chicago, IL. Diane's adult LGS daughter, Lindsay, recently moved into a local residential facility and is enjoying her new independence with friends. 

Diane shares, "As an ambassador, I enjoy networking and sharing experiences and information. My goal is always to make the LGS journey a little easier for someone else." 




New Family Welcome Kits

Free educational materials to those who want to learn more about LGS.

*One per household, please*

Patient Assistance Program

Financial assistance to help pay for durable medical equipment.

Re-Opening Feb. 2023

Caregiver & Sibling VIP Kits

These free VIP kits offer important  resources to support siblings and their families.


Follow Us on Social Media


Lennox-Gastaut Syndrome (LGS) Foundation
6030 Santo Road, Suite 1 Unit 420878 | San Diego, California 92142

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