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Stepping Towards the Cures, Together!

Saturday, April 20, 2024

Each year, hundreds of community members mobilize to raise awareness of Lennox-Gastaut Syndrome and raise crucial funds for the LGS Foundation's "Finding the Cures, Together" Research Program. 

With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved one's lifetime. We are here to change that! 

This vital program drives cutting-edge, patient-led research that leads to new therapies and treatments for those impacted by LGS! You can help too! We hope you'll join us!


Register for the 9th International Family & Professional Conference 

We hope you'll join us in Phoenix, AZ this July! Our comprehensive multi-day educational meeting brings together hundreds of LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with LGS.

Sessions cover topics like treatment options, improving quality of life, accessing resources, and much, much more. This year, we'll also have numerous breakout opportunities with subjects ranging from challenging behaviors and genetics to advocacy and adults with LGS. You don't want to miss it!


Meet Karen, Our New President!

We are delighted to welcome Karen Groff as the new President of the LGS Foundation Board of Directors. Karen is a retired educator and long-time member of the LGS Community. As a teacher, elementary principal, and staff development coordinator, she worked tirelessly to inspire and empower children, families, and staff to realize their full potential. We are honored that she brings this important work to the LGS community.

"As the new President of the LGS Foundation's Board of Directors, I understand the importance of providing leadership to energize a community of hope, discover cures, and implement the new five year strategic plan." - Karen Groff, President 


Our Community: Meet Andrew  

We love sharing stories and getting to know one another, so each month we will feature a member of our amazing community. This month, we would like you to meet Andrew.

Andrew is 24 years old. He lives in Maryland with his siblings and parents. 

Andrew's mother shares, "I have seen genuine pure joy that may not appear so significant to some, but these moments bring me true bliss. Watching a group of Andrew and his friends gather for a simple meal and dance may not seem like much, but I know it is to them. These moments aren’t always clear to most, but I’m proud to say they are to me."



Share Your Story

Your story can help others to understand what living with LGS is like and the impact it has on your family.

Advocate for LGS

Advocates for LGS is comprised of LGS community members who recognize the importance of using their voices to raise awareness both in our personal lives and at all levels of government.

FUNdraise for LGS

The LGS Foundation is powered by our community of families, friends, and supporters. Together we can make a difference!


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Lennox-Gastaut Syndrome (LGS) Foundation
6030 Santo Road, Suite 1 Unit 420878 | San Diego, California 92142
718-374-3800 | info@lgsfoundation.org

Standing Together. Stronger Together.
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