Looking Back and Looking Ahead in 2022
Wow! It is so hard to believe we are over halfway through 2022 already! Together, we have accomplished so much. Individually we can cause ripples that expand outward and touch those around us. Those ripples, and the LGS community’s collective focus, are how we can move mountains together!
We kicked off 2022 with our Elevate Patient Assistance Program, a program dedicated to assisting families living with LGS to obtain critical medical equipment that would otherwise be denied. In addition to providing durable medical equipment, the love and kindness in our amazing LGS community allowed us to award a wheelchair-accessible vehicle to a family with no transportation, giving them the independence they need to go to and from their child's many medical appointments.
We have also made it easier for families to get connected. A New Family Welcome Kit, combined with a personal welcome, bridges the gap between walking the LGS journey alone or walking alongside others who understand and care. Living with LGS can be a rollercoaster of emotions, and the decisions we make are tough; our families have each other! In our Patient Navigator and Family Ambassador program, volunteers are always standing by, ready to listen, walk the journey with you, and introduce you to resources that will make a difference.
Seeing everyone in person and learning more about LGS at our recent International Family & Professional Conference in Texas has left us all energized and ready for the rest of 2022. There is nothing like the feeling of coming together in person and finding a place where we belong. Thank you to everyone who attended and made this event possible!
Looking ahead, the second half of 2022 is filled with wonderful events. Our first ever Swing FORE A Cure Golf Outing is coming up soon. This one-day event will be packed with fun and competition, and all funds raised support our search for the cures for LGS. In November, International LGS Awareness Day events will kick off Epilepsy Awareness Month and activities include a Dance Party at Disneyland, Illuminate for LGS, and our Every Moment Matters Dinner at the Birch Aquarium.
Be on the lookout for more info about these exciting events and thank you for being a part of our incredible community of support!